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End-of-Life Care

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  • Yufang Tu M.S.Ed
  • Yuchi Young DrPH
  • Melissa O’Connor PhD

Abstract

This study explores end-of-life care decisions across cultures by comparing advance directives (ADs) laws in the United States (U.S.) and Taiwan. Specifically, it examines the U.S.’s 1991 Patient Self-Determination Act (PSDA) and Taiwan’s 2019 Patient ...
Open AccessResearch articleFirst published Mar 24, 2025
  • Hannah Hommes MSN, RN
  • Diane Forsyth PhD, RN
  • April Rowe Neal PhD, RN

Abstract

There is an emerging need to provide high-quality pediatric palliative care and end-of-life care to children, adolescents, and young adults with life-limiting illnesses. Currently, there are no standardized quality measures supporting pediatric palliative ...
Restricted accessResearch articleFirst published Mar 20, 2025
  • Darcy Holladay Ford PsyD, MA, LPC, RDN
  • Kimberly Landry MPH
  • Megha Jha MPH
  • Martha Meyer PhD

Abstract

Background
Intensive end-of-life (EOL) care is emotionally and financially burdensome, disproportionally negatively impacting racial and ethnic minorities, rural residents, and lower socioeconomic seniors.
Objectives
To evaluate the impact of race, ethnicity,...
Restricted accessResearch articleFirst published Mar 18, 2025
  • Simon Tavabie
  • Stephen Pearson
  • Janet Balabanovic
  • Anna Batho
  • Manoj Juj
  • Priscilla Kastande
  • Joanne Bennetts
  • Emily Collis
  • Tim Bonnici

Abstract

Objectives: Critical care is a place of frequent death, up to a quarter of those admitted die during admission. Caring for dying people provides many challenges, practically, professionally and personally. The aim of this study was to better understand ...
Restricted accessResearch articleFirst published Jan 22, 2025
  • Hannah J. Featherstone BSc, MB, BCh, BAO, MRCPI
  • Regina McQuillan MB, BCh, BAO, MA, FRCPI
  • Geraldine Foley BSc, OT, MSc, PhD

Abstract

Background
Healthcare professionals in specialist palliative care have a key role in conducting end-of-life care discussions with patients and their family caregivers. We aimed to identify key barriers and facilitators for healthcare professionals in ...
Open AccessResearch articleFirst published Nov 1, 2024
  • Saima Rashid MD
  • Scott P Boyles MDiv, BCC
  • Andrew Wampler Esq
  • Matthew Stolick PhD
  • Steven J Baumrucker MD, FAAFP, FAAHPM, HMDC
Restricted accessResearch articleFirst published Oct 4, 2024
  • Patrick D. Crowley DO
  • Francis X. Whalen MD
  • Leslie R. Siegel PharmD, RPh
  • Douglas W. Challener MD, MS

Abstract

Background
Antibiotics are frequently prescribed at the end of life, though the benefits and harms are not well understood.
Methods
We abstracted relevant findings from articles published in English in the past 25 years to answer questions generated by ...
Restricted accessResearch articleFirst published Sep 9, 2024
  • Andrea Bovero PsyD
  • Alessandra Loreta Cito PsyD
  • Rossana Botto PsyD, PhD
  • Alexa Pidinchedda PsyD
  • Veronica Olivetti PsyD
  • Marcello Tucci MD
  • Giuliano Carlo Geminiani MD

Abstract

Objectives
In our previous study we analyzed the prevalence of demoralization in a sample of 235 end-of-life cancer patients using the Demoralization Scale (DS). The findings revealed that 50.2% of the participants reported experiencing a moderate level of ...
Restricted accessResearch articleFirst published Sep 6, 2024
  • Abigail Thomas PharmD
  • Lacey Davis PharmD, BCPS, BCGP, FASCP
  • Allie Dolan PharmD, BCGP
  • Rebecca Prewett PharmD, BCPS, BCEMP

Abstract

Purpose
The use of antibiotics for end-of-life patients is controversial; currently there is limited guidance on the use of antibiotics in hospice patients. The threat of antibiotic resistance, risk of adverse events, variable efficacy, and time to benefit ...
Restricted accessResearch articleFirst published Aug 13, 2024
  • Bhanu P. Maurya MD
  • Raghav Gupta DM
  • Puneet Rathore MD
  • Seema Mishra MD
  • Sachidanand J. Bharati DM
  • Vinod Kumar MD
  • Nishkarsh Gupta MD
  • Rakesh Garg MD
  • Sushma Bhatnagar MD

Abstract

Purpose
To assess the End of life care (EOLC ) practices and the magnitude of futile care in a tertiary cancer center. To find out the barriers in provision of good EOLC in cancer patients.
Methods
An observational study was done on 129 patients. Patients ...
Restricted accessOtherFirst published Jul 28, 2024