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Cerebral Palsy

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Clinical utility of a patient-reported outcome for assessing spasticity in a pediatric population

  • Elaine Hong Hatch
  • Ashlee M. Jaffe
  • Laura A. Prosser

Abstract

Purpose
This study aimed to (1) examine the construct validity of the Zorowitz spasticity patient-reported outcome (PRO) scale in pediatric populations and (2) examine the scale's responsiveness to change in children to determine its clinical utility in ...
Open AccessResearch articleFirst published Dec 8, 2024
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New-onset hydrocephalus in an adult with cerebral palsy: A case report and review of the literature

  • Jeremy Roberts
  • Denesh Ratnasingam
  • Cristina Sarmiento

Abstract

Hydrocephalus is a common comorbidity associated with brain injuries, including cerebral palsy (CP). In CP, hydrocephalus typically presents in infancy or early childhood. This report describes a patient in their mid 20 s with mixed dyskinetic-spastic CP ...
Open AccessCase reportFirst published Sep 10, 2024
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Quantitative ultrasound of submental and masticatory muscles in children with cerebral palsy

  • Marloes L.J. Lagarde
  • Karen van Hulst
  • Corrie E. Erasmus
  • Lenie van den Engel-Hoek
  • Alexander C.H. Geurts
  • Nens van Alfen

Abstract

PURPOSE:
Quantitative muscle ultrasound (QMUS) is potentially valuable as a diagnostic tool in central neurological disorders, as it provides information about changes in muscle architecture. This study aimed to investigate whether ultrasound images of ...
Open AccessResearch articleFirst published Jul 2, 2024
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Approach to obtaining a swallow study in a five-year-old with a disability and significant procedural anxiety: A case report

  • Tyler Estes
  • Aaron Gaul
  • Allison Thornton
  • Laura Hobart-Porter

Abstract

CASE DESCRIPTION
A five-year-old male with spastic quadriplegia cerebral palsy and an expressive communication disorder presented because the family desired liberalization of diet. The diet consisted of pureed solids and no liquids due to deficits ...
Open AccessCase reportFirst published May 24, 2024
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Pure grit: Ordinary and extraordinary

  • Matthew MacCarthy
Open AccessOtherFirst published Mar 26, 2024
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The critical need to accelerate cerebral palsy research with consumer engagement, global networks, and adaptive designs

  • Sruthi P. Thomas
  • Iona Novak
  • Anina Ritterband-Rosenbaum
  • Karin Lind
  • Annabel Webb
  • Paul Gross
  • Maria McNamara
  • the CP Global Clinical Trials Network

Abstract

The prevalence of cerebral palsy (CP) varies globally, with higher rates and burden of disease in low- and middle-income countries. CP is a lifelong condition with no cure, presenting diverse challenges such as motor impairment, epilepsy, and mental ...
Open AccessOpinionFirst published Mar 26, 2024
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Erratum to: 2023 updates to the spina bifida transition to adult care guidelines

    Open AccessCorrectionFirst published Mar 26, 2024
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    JPRM vol. 17 issue 1 Opening Editorial

    • Heakyung Kim
    • Christopher Raffi Najarian
    • Justin W. Ramsey
    • Sruthi Pandipati Thomas
    Open AccessEditorialFirst published Mar 26, 2024
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    Utilizing combination intrathecal baclofen and analgesic medication to manage spasticity and pain in patients with pediatric-onset disability: Case series

    • Denesh Ratnasingam
    • Tess Woehrlen
    • Samantha Koerber
    • Emma Drenth
    • Neena Marupudi
    • Melisa Concepcion
    • Erika Erlandson

    Abstract

    PURPOSE:
    The use of intrathecal medications for the management of spasticity and various pain syndromes in the adult population has been previously reported. However, no evidence-based guidelines currently exist in the pediatric population. This case ...
    Open AccessResearch articleFirst published Mar 23, 2024
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    Medical delivery without representation?: Examining disability representation within the healthcare community

    • Justin Ramsey
    • Christopher Raffi Najarian

    Abstract

     Individuals with disabilities comprise approximately 13% of the overall population. This editorial explores recent events that may involve ableism. The recent COVID pandemic created a rapid need and pressure to develop ventilator allotment policies. Many ...
    Open AccessEditorialFirst published Mar 23, 2024
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